It’s been just over a week since my wife was discharged from hospital.
Number of times a Physiotherapist has contacted us or called round: None
Number of times an Occupational Therapist has done the same: None
Same for the Multiple Sclerosis Nurses: None
District Nurses: Twice (but only because I refused to do her daily injection until they did proper Pressure area care)
Pain Management? No.
Social Services? Nope, none of them either
Any other NHS professionals? No
We do get 2 carers who call in 3 times a day for personal care. They are great. This care is ‘free’ for 6 weeks (from some arbitrary point we have been unable to determine – fall? or the discharge) after which we have to pay.
J’s left leg is the broken one. It’s always been hardest hit by the MS. The MS Nurse should know this so why has she not told the physio to concentrate on the right leg? No idea.
Why has the OT not visited to assess the home environment?
Why is my wife still struggling with pain?
What is the point of Social Services?
What really is the point of a Multiple Sclerosis Nurse? (Answer? NONE)
It is hugely frustrating here right now. As far as the NHS is concerned a target was hit – a ‘broken hip’ was discharged home within the allotted time frame. And now no-one in the NHS gives a flying fuck about anything.
And there is so little we can do. We have to accept whatever we are given.
Right now the ‘free care’ will disappear and then what? We have absolutely no idea at all.
Can someone please kill Jeremy Hunt and David Cameron? That might get some motivation going – assassinations should make a comeback. (Yes, that is an incitement to violence. Sue me).